Angels Among Us

Our family truly believes their are angels among us, and we have proof!

On Monday, January 19, 2009, the kids and I were out of school for MLK day. Since I was with the kids it meant my parents had the "day off" from babysitting. My dad made an appointment in Gaffney, SC to have some work done on his motor home. Mom and Dad took the motor home to Gaffney, towing their car behind because the work on their motor home would take at least a week. On their way home they decided to eat dinner at the Olive Garden in Greenville, SC.

While waiting on their table, my mom sat down beside a lady with a child in her lap. My mom began talking to the lady about her little girl (mom doesn't meet a stranger). They made small talk with mom mentioning that she had a grandson close in age to the little girl. She also mentioned a little about having grand kids and keeping her granddaughters while Dayna (my sister) and I teach school. Their conversation was cut short due to an available table awaiting.

On January 25, 2009 I received an email from Mrs. Manning, a woman who found my blog while researching the medication her daughter is taking for acid reflux. Mrs. Manning mentioned in her email that her almost 2 year old daughter had several bouts of illness, some that included positive bacterial throat cultures. She said that the doctors suggested having her tested for CF, but when the bacteria went away on its own, they decided not to test her. One of the last things Mrs. Manning asked was about about a picture she saw on my blog. The lady labeled "Gigi" was the lady she thought she saw at the Olive Garden in Greenville, SC.

Before Mrs. Manning's email, I didn't even know my parents stopped at the Olive Garden in Greenville on their way home. I immediately called my mom to inquire about her encounter with Mrs. Manning. She confirmed that she spoke to a nice lady with a very calm (she noticed that because my 2 year old is far from being calm!) little girl sitting in her lap. We could not believe my blog brought her back into our lives for a second time. Was it a coincidence or was God trying to tell us something?

We emailed back and forth several times. Mrs. Manning had several questions about having her daughter tested for CF. Her daughter was ill again and they wanted to find the root of the problem. I encouraged her to go through with testing, if for nothing other than peace of mind. I checked my email every hour to find out the results. When I received the email with her daughter's results, a overwhelming sense of relief came over me. Her daughter's sweat test was negative! She does not have CF. Mrs. Manning's email also mentioned that she had something else to share with me, but she was really busy and would tell me later. The kid in me really likes surprises and suspense, and once again I found myself checking my email every hour.

On Wednesday, February 4th, after a long day at work, then church dinner, parenting class, bathing the kids, and getting them ready for bed, I finally had the opportunity to work on my taxes. I watched my favorite show, LOST, while working on my taxes. After my favorite show was over, I went downstairs to make lunches for the next day, when I spotted the mail. The anticipated wedding invitation to Chris and Kelly's wedding had arrived! There was also an envelope with my name from someone in South Carolina. Without thinking twice about the fact that I don't know anyone right off hand that lives in SC, I quickly opened the envelope (back to the excitement of getting mail!). A letter, a picture, and a check were enclosed in the envelope from SC. This is what the letter said...

DeAnn & Family,

In my last email, I made reference to something else I needed to tell you. I decided to mail this letter explaining an answered prayer that I have recently experienced.

Please accept this gift as the Lord has asked us to give it to you. I understand from your blog that you are a Christian family. Therefore, I am sure that you have the knowledge of the spiritual gifts of giving. We are a Christian family from Laurens, SC. We moved to Chapin, SC in October 2004 and attended Chapin Baptist Church during the four years that we lived there. We moved back to Laurens in June 2008 and have been attending NewSpring Church in Greenville, SC since our last move. Our faith has recently grown stronger. Your mother (Gigi) initially made contact with me in Olive Garden, Greenville, SC (January 19, 2009). I didn't realize it at the time but I have been praying for God to intervene and help us with a financial decision. We sold our house in Chapin in August 2008 and fortunately made a small profit during this time of economic crisis. We have been trying to decide where to contribute a portion of God's gift to us (housing profit). I received a book from NewSpring Church titles 'The Blessed Life' by Robert Morris. In regards to offerings over and above tithing, I learned that we are not to decide where to give but we should pray and ask God where He wants us to give. Prior to meeting your parents in Olive Garden, I just completed reading this book and have been in prayer over the material I have read. On January 25, 2009, I started an internet search on my daughter's reflux medication, Axid, and ended up on your blog. When you initially responded to my email on January 26, 2009 with the confirmation that I had met your mother- I knew that God was at work in this connection.

I called my husband at work on Tuesday (26th) and told him about my answer from God. I cried with joy. My husband, without hesitation, agreed that God is at work and is responding through this connection.

Your family blog and your email's with me have so greatly touched my heart. I really appreciate your communication with me through my daughter's sweat chloride test this past week. I have not ever developed an internet friendship such as this. I plan to pray for little Lainey and your family and keep in touch with her progress. She is such a beautiful baby and she deserves such a great family that you are.

Please accept this gift and Thank You and Your Family for allowing God to work through you in response to my prayers.

With Love, Prayers, and Thanks!

The Manning's

I was in tears reading this letter! Seeing their family picture helped put a face with their names. As if I was not already totally amazed in how God works and his intentions of bringing our families together, but the check that was enclosed with the letter and the picture was written to me in the amount of $1,000.00. I immediately handed the letter over to my husband, who was already thinking I was nuts because I was crying over this letter I received in the mail. Needless to say, he was balling after the second sentence! All he could say was, "Call your mom!"

Before my mother could say hello, I said listen to this letter I got in the mail (she was not shocked to get a call like this from me because I always call her like that when I have something important I need to tell her). She was totally taken aback. We were sure then that there are really angels among us. There is still good in this world. There are still people that truly believe in God's intentions.

Without hesitation, I blurted out my intentions of what the money would be used for ~ CF research! The Manning's gave the money to us, but in the long run what will make us the most happy? ~ A cure for CF. A good bill of health for our precious baby girl. A normal life for her in this not so normal world. A story for her to tell of the people who God led into her family's lives. The Manning's money could be the $1,000.00 that buys the ingredients that are mixed together to find the cure for Cystic Fibrosis. How could I ever keep that money for our usage? Yes, we have expenses we never thought we would have. Yes, we have medical bills that we are paying on. Yes, Lainey's monthly expenses are beyond what we financially are able to provide, but we make it. God has helped us this far and we know He will not let us down. I am sure He also wants us to donate the money to the CF Foundation.

In addition to the money the Manning's sent us, they also donated $200.00 in Lainey's honor to the CF Foundation. Lainey has her own gift registry through the CF Foundation http://www.cff.org/GiftReg/DeAnnSmithson with a current goal of $1000.00 by her first birthday to help fund Cystic Fibrosis research. With the $1,200.00 total donation from the Manning's and a donation from our friends The Childer's, we are well above our goal. We will also be going beyond this goal even farther with the help of our friend's, The Rock's. Their daughter, Campbell, will be turning 1 on March 25, 2009. In lieu of gifts, they are asking for donations to be made to the CF Foundation in Lainey's honor! We will also be doing the same for Lainey's 1st birthday. Our family is in awe over the number of people who are supporting us and the research that will ultimately save the people with Cystic Fibrosis. With this being said, I will be raising our goal this week from $1000.00 to $2,000.00 in donations by Lainey's 1st birthday.

Thank you so much Manning Family! God has shone His abilities through our connection. We are eternally thankful for your thoughtfulness and your donations, but more importantly for your friendship. We love you! :)

The Smithsons
Sid, DeAnn, Logan, Liam, and Lainey

A Buggy Kind of Day

Lainey and I enjoyed playing today while the boys were taking a nap! We needed some girl time since I went to the CF Family Day at Emory in Atlanta Friday night and got home Saturday evening. Sid had to work all weekend and the CF Family Day began at 8:00 am on Saturday, therefore I had to find places for the kids to hang out! Lainey went with Gigi and Papa to Warner Robins, Georgia on Friday and came back Saturday night. Lainey got to go see her Great Grandpa Bob, Great Grandma Lil, Great Pop, and Great Grandma Dorothy while she was visiting in Warner Robins. Liam and Logan went to hang at their Papa Dan's house Friday night until I picked them up on Saturday evening. Liam and Logan got to visit with their Great Grandma Barbara. Although I was told that each kid was very well behaved, each grandparent looked worn out!





Friday night, Jenn and I went to Atlanta to eat (without kids and husbands) and spent the night at Grandmomma's house (Jenn's Grandmother-in-law). Grandmomma lives on the same road as the Cystic Fibrosis Center at Egleston! We had a great time eating at Chili's without someone throwing a fit, someone needing more juice, someone tying to get out of the highchair, and someone having to go to the bathroom! It was nice to have an adult conversation and actually enjoy a meal! Staying at Grandmomma's was also great because we left her house at 7:50 am for the CF Family Day, which began at 8:00 am! This was way better than driving an hour from Gainesville and hoping we got their on time. Thank you for letting us stay at you house Grandmomma!

When we finally found our way to the CF Family Day activities, there was a wonderful spread of breakfast foods. While we ate we walked around to all of the CF related vendors. There were so many vendors with things I had never seen before. Jenn and I had a great time walking around to each vendor. We learned and saw a lot of cool things...we also picked up a lot of FREE goodies! If anyone uses Ultrase, the rep informed me that there will be some new and exciting things the company will be starting soon...but she couldn't tell me about it yet! She said the people using Ultrase, Scandi Shakes, etc. will receive something in the mail around February 16th! I can't wait to find out what is new!

The CF Family Day also included several speakers sharing information about current CF research, nutrition, phase 3 drugs, and the importance of airway clearance. I learned soooo much! To answer Reilly's mom, Cindy's question she once asked, Do CF carriers have symptoms?, YES! The doctors said that many carriers of CF may also have sinus issues, asthma, frequent upper respiratory infections, digestive issues, anemia, vitamin D deficiencies, and more!! Hearing this bit of information gave me some understanding behind many of my personal health issues. I am constantly battling a sinus infection, I have had sinus surgery, each winter/spring I get chronic bronchitis, I have always had digestive issues, I am anemic and vitamin D deficient! Wow....one could think I had a mild case of CF...but my blood work says I am just a carrier of Delta F508!

I learned that 90% of people with CF or people who are carriers of CF, have the gene mutation DF508. Researchers are working on ways to correct the DF508 mutation. It is believed that if at least one of the mutations causing CF can be corrected, then it would be as if the person who once had CF was now just a carrier! Since carriers are typically healthy people, the hope is that would also be the case for those with the repaired mutation. The data and research findings were incredible. A CURE is within reaching distance....I am sure! It was noted that they are having difficulty funding the much needed research due to the economy, so it is up to the people who are affected by CF to spread awareness. It is vital to Lainey's life as well as others affected by CF for the CF Foundation to continue receiving funding for their research. Please donate if you can...you will be saving lives sooner rather than later! Here is the link to Lainey's donation page ~ http://www.cff.org/GiftReg/DeAnnSmithson

There was so much more I learned, but I could never post all of it...not because I can't remember or don't have the energy to talk about it...but because I don't have the time to type it all! Talking is my favorite thing to do....as if most people didn't already know that....so ask me some questions the next time you see me!

Please continue to pray for our family! I think we are all over the stomach virus, but we all still have stuffy and runny noses! We are hoping that Lainey's runny nose goes away or at least continues to stay clear! This week brings many things...inquiring about putting our house on the market, Logan's 5th birthday, doctor appointments, a WIC appointment, Valentine parties, Synagis shots, and I am sure there will be more! Good health and sanity continues to be in my hourly prayers!

Have a blessed week,
DeAnn

PS ~ Lainey is sitting up on her own now!! YEA Lainey! She loves seeing everything from her new view!

Blessings

Who was that overweight man by the Christmas tree?

Now that I am finished stuffing my face with Thanksgiving yummies, I am finally free to update everyone on our most thankful Thanksgiving. Although dad and grandma Lil were sick with the stomach bug (Logan and I began spreading it several weeks ago) and it was cold and rainy, we had a wonderful time camping at Stone Mountain! We arrived and set up our campsite just in time for dinner Tuesday evening. After eating a wonderful meal made by grandma Lil, we were actually able to go to bed by 10:30!! The next morning came quickly along with the news that both dad and grandma Lil were up all night with the stomach bug! With that, our camper became "hang-out" away from sick people!

On Thursday everyone was feeling well enough to eat a full Thanksgiving feast. Dayna, Brad, and Lilly Anne joined Sid, Logan, Liam, Lainey, mom, dad, grandma Lil, grandpa Bob, Uncle Donn, Aunt Jenny, Emily, Erin, Evan, Elizabeth, and I for Thanksgiving dinner. We were like the original Indians and pilgrims ~ eating outside at a long wooden table with a feast of food fixed using numerous methods of preparation! Note * campers have ovens and stoves, but not big or durable enough to handle a Thanksgiving feast. Luckily our campsites were equipped with big grills ~ ideal for our cooking minus the fact we had to do the cooking outside!

After a day full of compiling lists of items I wanted to purchase, I was up and shopping by 7:00 on Friday! Fortunately not many people that live close to Stone Mountain park were interested in shopping! I was able to get everything I wanted and did not even have to wait in line at the register....and I was at Wal-Mart and Target! I saved a lot of money and almost completed my Christmas shopping within a few hours....now for my least favorite thing ~ wrapping!

We were thrilled to have Sid's grandparents, Dick and Juanita, come to visit us in Stone Mountain. On their way to Florida for the winter from their home in Michigan, Dick and Juanita came to see our family and to meet Lainey for the first time! It is always great to see them although it is not as often as we would like! :(

It began raining mid afternoon on Friday and continued through our packing, our trip home, and the remainder of the day on Saturday. We had a wonderful time with our family and camping at Stone Mountain, but it is always great to be back home.

The Smithson Elves

After much convincing from the kids and I, Sid got the decorations out of the attic and began putting up the tree on Saturday evening! I am not sure who is more excited about Christmas this year, Sid and I or the kids! Logan and Liam are really into making Christmas lists this year. Their understanding of Santa and the true meaning of Christmas with the birth of Jesus is more apparent than ever. The innocence of a child at Christmas is priceless.

Buggy Claus!

I have added the video below as a reminder of the things our family is thankful for. This year has been full of emotions ~ happiness, sadness, anger, helplessness, jealousy, fear, awe, wonder, numbness, loneliness, amazement, hopefulness, and so many more emotions that continue to be with our family daily. The support of our family, friends, and people we don't even know, has been the greatest of all blessings. We are eternally thankful for everyone who has and continues to keep our family in their thoughts and prayers. It is our mission to share our story with as many people as possible in order to spread awareness of Cystic Fibrosis. We hope that Lainey will be able to tell her children and grandchildren that she had CF, but with the help of others CF now stands for Cure Found. Please consider making a donation to the Cystic Fibrosis Foundation ~ 90 cents of each dollar donated is used directly for research purposes. Donations in Lainey's honor can be made at: http://www.cff.org/GiftReg/DeAnnSmithson

** Before watching the video, scroll to the bottom of the web page to pause the music. The pause button is on the top left of the music playlist.**

Sincerely,

The Smithsons

Lainey's 2nd CF appointment

Hello. Yesterday Lainey (8 weeks old) had several doctor appointments and I am happy to report that she is doing awesome! Our first appointment was with the surgeon. After looking a her incision (from surgery when she was 5 days old) and the site where the t-tube entered her colon, Lainey was given a thumbs up! No more visiting the surgeon unless she were to need future surgeries! Our second appointment was with her team at the Cystic Fibrosis Center. Her team consists of a nurse, respiratory therapist, social worker, dietitian, and doctor. Lainey weighed in at 9 lbs. 6.7 oz! This was a gain of almost one and one half pounds in 3 weeks!! She also grew another 2 inches to make her 23 inches long! Her weight has been a huge concern of ours, thus putting most of our effort into fattening her up! The more weight she gains her first three years of life, determines how well she will do as she progresses in her disease. The team would still like to see her gain 3 pounds per month, but they were satisfied with what she gave them this time! To assist in gaining weight, her enzyme intake has increased to one and one half capsule per feeding. Since the capsules assist in food absorption, they are hoping this will help her to gain even more weight. Anemia is also a concern with Cystic Fibrosis. Since she has been whiter than me (that is hard to believe) indicating low iron levels, her iron intake has also increased. Aside from learning how to perform chest physical therapy for preventative measures, her lungs sounded great! For now, and hopefully forever, her Cystic Fibrosis is only effecting her digestive system. Although she will be on enzymes for the rest of her life, we are hoping to prevent any and all respiratory infections that might reduce her lung function. With the new school year quickly approaching, please pray for my parents as they will be caring for Lainey. Since even the smallest cold could send Lainey to the hospital for a couple of weeks, the doctor strongly suggests keeping her out of daycare for at least one year! Taking care of Lainey will be a big job for my mother since she is in poor health. It will also keep my parents from traveling; something they have enjoyed since dad retired last August. We are fortunate to have them care for Lainey. She is guaranteed to be spoiled rotten at the end of each day! Thank you to everyone for your thoughts, prayers, words of encouragement, and gifts. To learn more about Cystic Fibrosis and how to help find a cure, check out the Cystic Fibrosis Foundation web site at www.cff.org .
Sincerely,
DeAnn, Sid, Logan, Liam, and Lainey