Saturday, February 28, 2009
What's Up Doc?
Sunday, February 22, 2009
Counting Calories and Having Fun!
This weekend the boys, Lainey, and I went to the local Home Show with my parents. Our home is fairly new, so I don't really know why I went other than it was an escape from the house! In addition to the escape, it meant that I had two other people helping me with my children for at least a couple of hours. Although one would think the home show would be boring to a 5 year old, almost 3 year old, and a 9 month old, the kids had a blast! They were some of the only, if not the only, kids at the home show. They racked up gathering free "goodies" from each booth! We now have mini flashlights, foam baseballs, potted flowers, notepads, pens, crayons, bandaids, coloring books, candy, and much more! I went to the Home Show several years ago and won a patio table and chairs, so that is always incentive for me. No such luck this year! I didn't win anything, but having a day of entertainment made me feel like a winner! Thanks mom and dad for getting all 4 of us out of the house! We had fun at the Home Show and enjoyed some yummy food at Brad's Grill (compliments of Gigi and Papa)!
Logan and the frog at the Home Show!
Liam did not want his picture taken....but here he is with the frog!
This week brings several appointments. We were suppose to go to the pediatrician's office and the CF Center last week, but our plans changed. The pediatrician was sick on Thursday, therefore Logan's 5 year checkup and Lainey's 9 month check up were cancelled. We are now scheduled to go this Thursday morning. I rescheduled Lainey's CF appointment because the boys were still under the weather from having Strep Throat. We will be going this Friday for her appointment at the CF Center, while Gigi and Papa go for their checkup at the cardiac clinic at Emory. This works out perfect because we can take one vehicle to Atlanta since the CF Center and Emory are next door to each other. I am also happy we are going the same day as my parents because now I do not have to find a babysitter for Lainey! Since my parents take care of Lainey, when they are traveling, at the doctor, or are sick, I must find another place for Lainey...or take a day off of work. I like being home with Lainey, but I am trying to save my days for our Disney Cruise in October and incase Lainey were to get sick. Thanks to Josie's mom, Kay, Lainey usually has a place to stay when Gigi and Papa are not available!Please pray for good visits at both the pediatrician's office and at Lainey's CF clinic. We are hoping that Lainey has met our goal of 18 lbs! Check back later this week for updates on our visits! :)
BYE!
The Smithsons
Sunday, February 8, 2009
A Buggy Kind of Day
Friday night, Jenn and I went to Atlanta to eat (without kids and husbands) and spent the night at Grandmomma's house (Jenn's Grandmother-in-law). Grandmomma lives on the same road as the Cystic Fibrosis Center at Egleston! We had a great time eating at Chili's without someone throwing a fit, someone needing more juice, someone tying to get out of the highchair, and someone having to go to the bathroom! It was nice to have an adult conversation and actually enjoy a meal! Staying at Grandmomma's was also great because we left her house at 7:50 am for the CF Family Day, which began at 8:00 am! This was way better than driving an hour from Gainesville and hoping we got their on time. Thank you for letting us stay at you house Grandmomma!
When we finally found our way to the CF Family Day activities, there was a wonderful spread of breakfast foods. While we ate we walked around to all of the CF related vendors. There were so many vendors with things I had never seen before. Jenn and I had a great time walking around to each vendor. We learned and saw a lot of cool things...we also picked up a lot of FREE goodies! If anyone uses Ultrase, the rep informed me that there will be some new and exciting things the company will be starting soon...but she couldn't tell me about it yet! She said the people using Ultrase, Scandi Shakes, etc. will receive something in the mail around February 16th! I can't wait to find out what is new!
The CF Family Day also included several speakers sharing information about current CF research, nutrition, phase 3 drugs, and the importance of airway clearance. I learned soooo much! To answer Reilly's mom, Cindy's question she once asked, Do CF carriers have symptoms?, YES! The doctors said that many carriers of CF may also have sinus issues, asthma, frequent upper respiratory infections, digestive issues, anemia, vitamin D deficiencies, and more!! Hearing this bit of information gave me some understanding behind many of my personal health issues. I am constantly battling a sinus infection, I have had sinus surgery, each winter/spring I get chronic bronchitis, I have always had digestive issues, I am anemic and vitamin D deficient! Wow....one could think I had a mild case of CF...but my blood work says I am just a carrier of Delta F508!
I learned that 90% of people with CF or people who are carriers of CF, have the gene mutation DF508. Researchers are working on ways to correct the DF508 mutation. It is believed that if at least one of the mutations causing CF can be corrected, then it would be as if the person who once had CF was now just a carrier! Since carriers are typically healthy people, the hope is that would also be the case for those with the repaired mutation. The data and research findings were incredible. A CURE is within reaching distance....I am sure! It was noted that they are having difficulty funding the much needed research due to the economy, so it is up to the people who are affected by CF to spread awareness. It is vital to Lainey's life as well as others affected by CF for the CF Foundation to continue receiving funding for their research. Please donate if you can...you will be saving lives sooner rather than later! Here is the link to Lainey's donation page ~ http://www.cff.org/GiftReg/DeAnnSmithson
There was so much more I learned, but I could never post all of it...not because I can't remember or don't have the energy to talk about it...but because I don't have the time to type it all! Talking is my favorite thing to do....as if most people didn't already know that....so ask me some questions the next time you see me!
Please continue to pray for our family! I think we are all over the stomach virus, but we all still have stuffy and runny noses! We are hoping that Lainey's runny nose goes away or at least continues to stay clear! This week brings many things...inquiring about putting our house on the market, Logan's 5th birthday, doctor appointments, a WIC appointment, Valentine parties, Synagis shots, and I am sure there will be more! Good health and sanity continues to be in my hourly prayers!
Have a blessed week,
DeAnn
PS ~ Lainey is sitting up on her own now!! YEA Lainey! She loves seeing everything from her new view!
Thursday, December 18, 2008
We've Caught the Christmas Bug!




Monday, November 24, 2008
Good Times
Wednesday, September 17, 2008
CF Kisses

We received frustrating news on Monday from the kids' pediatrician. Supposedly the tubes used to collect Logan and Liam's blood sample for the CF test were not the correct tubes. The cap on the tubes were a different color yellow than what they typically use when testing for genetic diseases. All in all, the blood samples are no good. They must be drawn again! I am refusing to go through that torture again...It is Sid's turn! Most of all, I hate it for the boys. They should not have to go through the pain again because somebody used the wrong colored tube lid when collecting their blood! For those of you that know what I am like when I am mad, be assured the pediatrician will know as well! I am waiting for a phone call back from him! When we have more news on the boys' tests, I'll let you know.
Reminder ~ Lainey will be baptised at 10:55 on Sunday at Gainesville First United Methodist Church! Please join us if you would like. Thank you for all of your support! Prayers are always needed and greatly appreciated! Please continue to pray for good health, weight gain, working enzymes, and correctly gathered blood samples!
Much Love from our family to yours,
The Smithsons