Tuesday, December 30, 2008
Saturday, December 27, 2008
Our Christmas actually began on Monday the 21st by exchanging gifts with my birth mother and her husband, David. Although I have only known Carolyn since 1999, our bond is one of 29 years! She has always made me feel so welcomed into her life and into her family. This year she and David gave us numerous gifts, but the best and most anticipated gift of all is a Disney Cruise to the Bahamian Islands...in October 2009! I am not sure if Sid and I are more excited or if the kids are! Thanks a bunch Carolyn and David!
Carolyn and Lainey
Christmas eve we went to the 9:00 pm service to accommodate Sid's work schedule, and it was wonderful. Mom, dad, Dayna, Brad, and Lilly Anne joined us for church. Lainey was very well behaved and sang nicely throughout the Christmas hymns! We thought going to church would make the boys extremely tired....not so much! They were up until 11:45!
The Snug Bug at the Christmas Eve church service.
Christmas morning Logan came into our room around 9:00. It was still as quiet as a mouse around our house! Everyone was worn out from our late night Christmas Eve! When it finally dawned on Logan that it was Christmas morning, the morning he had been counting down to for 364 days, he was down the stairs in a flash! He came back upstairs to report that Santa left a lot of presents, but he only saw gifts for Liam, Lainey, and dad. After convincing him to wake up his brother and going back downstairs to look for his name on the presents, he finally found "more than I asked for!"
Our tree after Santa visited!
Logan's organized stacks of presents. I wonder where he gets that from?
Logan with food for the kitchen set.
Logan has memorized many infomercials, but this is the one thing "we have to get!"
Gigi and Logan handing out presents.
Sid and Liam waiting for their presents.
Logan opening presents at Gigi and Papa's house.
The day after Christmas we got up early to begin our trip to South Georgia. First we went to my dad's parents house in Perry. Grandma D had tons of yummy food prepared as she always does. We opened gifts and lucked up with some money. It was great hanging out with Grandma D and Pop. Our visits are always so short.
Great Pop and Lainey hanging out.
The great grandchildren with Grandma D and Pop.
Lainey, Liam, Logan, and Lilly Anne
Grandma Lil with Dayna's baby, Lilly Anne.
As always, we missed Sid's dad Noel, whom Lainey carries his name as her middle name. He sent us a very nice monetary gift, but to have him here would be better than anything we could dream of! Maybe soon it will be in our schedule and budget to take a trip to Texas to visit Sid's relatives!
Wednesday, December 24, 2008
With this news, Liz recommend adding another enzyme to the three she already takes before each meal! Now Lainey is taking 4 Ultrase enzymes before she eats a meal! Although this is on the high end for a child of her age and weight, we are hoping this does the trick! If this is not the solution, we will try another brand of enzyme! In case you are unsure of what the enzymes are designed to do, if they are working properly they should help take the place of natural pancreatic enzymes. They help breakdown food and assist in absorption of fat, vitamins, minerals, and other important things found in food. Since the mucus within Lainey's body is very thick as a result of Cystic Fibrosis, her pancreas is plugged. As a result of a plugged pancreas, Lainey's natural pancreatic enzymes are not able to be released into the stomach to aid in breaking down her food. Now we are working on finding out exactly how many enzymes she needs to correctly and effectively breakdown her food! What a chore this has proven to be! We have been working on this since she first ate when she was in the NICU at Egleston! I am pretty sure it will be something we will always have to work on....until there is a cure for Cystic Fibrosis! BLAH....but we will do ANYTHING it takes to make sure Lainey is healthy, happy, comfortable, and everything else she needs to fulfill her dreams!
Thank you for keeping us in your prayers! We are blessed to have so many people keeping us in their thoughts and prayers! Have a Merry Christmas! Look back tomorrow for pictures of the Smithson Family Christmas morning!
Monday, December 22, 2008
Logan waiting for "a long time" to see Santa!
Logan riding the horse.
Logan was too heavy for Santa's lap, Lainey would stare and cry (she isn't liking too many men right now), and Liam....Isn't he such a pleasant child?
Thursday, December 18, 2008
Night Night Buggy!
Lainey and "Yellow" ~ "Yellow" was a Christmas gift from the doctors, nurses, and staff at the CF Center.
Lainey and her new friend, "Yellow."
Tuesday, December 16, 2008
Monday, December 8, 2008
Wednesday, December 3, 2008
The Christmas Bug!
Lainey and Mommy checking out the tree!
Sunday, November 30, 2008
On Thursday everyone was feeling well enough to eat a full Thanksgiving feast. Dayna, Brad, and Lilly Anne joined Sid, Logan, Liam, Lainey, mom, dad, grandma Lil, grandpa Bob, Uncle Donn, Aunt Jenny, Emily, Erin, Evan, Elizabeth, and I for Thanksgiving dinner. We were like the original Indians and pilgrims ~ eating outside at a long wooden table with a feast of food fixed using numerous methods of preparation! Note * campers have ovens and stoves, but not big or durable enough to handle a Thanksgiving feast. Luckily our campsites were equipped with big grills ~ ideal for our cooking minus the fact we had to do the cooking outside!
The Smithson Elves
I have added the video below as a reminder of the things our family is thankful for. This year has been full of emotions ~ happiness, sadness, anger, helplessness, jealousy, fear, awe, wonder, numbness, loneliness, amazement, hopefulness, and so many more emotions that continue to be with our family daily. The support of our family, friends, and people we don't even know, has been the greatest of all blessings. We are eternally thankful for everyone who has and continues to keep our family in their thoughts and prayers. It is our mission to share our story with as many people as possible in order to spread awareness of Cystic Fibrosis. We hope that Lainey will be able to tell her children and grandchildren that she had CF, but with the help of others CF now stands for Cure Found. Please consider making a donation to the Cystic Fibrosis Foundation ~ 90 cents of each dollar donated is used directly for research purposes. Donations in Lainey's honor can be made at: http://www.cff.org/GiftReg/DeAnnSmithson
** Before watching the video, scroll to the bottom of the web page to pause the music. The pause button is on the top left of the music playlist.**
Monday, November 24, 2008
Wednesday, November 19, 2008
Monday, November 17, 2008
Saturday, November 15, 2008
This is the only picture I was able to take with Logan standing up!
Although I am not sure I was ready for Lainey to reach this milestone, she began holding her bottle this week! Sid was not moving fast enough and Lainey was ravenous, so she grabbed the bottle from him and fed herself! At least we still have a while until she can take her enzymes without help!
This "Bug" was tired of waiting for her dad to give her what she wanted, so she took care of it herself! Dad better watch his wallet!
Liam ~ "One tough cookie!"
Yesterday Lainey had her second dosage of Synagis. We had to weigh her at home and report her weight to the nurse in order for her to administer the correct dosage of Synagis. Lainey weighed in at 14 lbs. 8 1/2 oz! We are thrilled by this weight! Last month at Dr. Caplan's office, she weighed 13 lbs. 1 oz. This is a gain of almost one and one half pounds! On Monday we will be going back to the CF Center to see Dr. Caplan for Lainey's monthly check-up. At this time we will find out if she has gained any more weight. She loves eating rice cereal and baby food with added vegetable oil, which has proven to help her pack on some weight! Check back Monday evening for an update on our visit.
On Monday I will also go to the doctor to have repeat labs drawn. Hopefully we will learn something from these labs. If the meds I have been taking for a little over a month are doing what we intended them to do ~ increase iron levels, lower prolactin levels (breast milk release), raise vitamin D levels, higher estrogen levels, and higher kidney function ~ then I will feel like it has been worth the 5 pounds I've gained due to the meds! I am still not totally convinced that everything is okay, but I will wait to see what the tests reveal. I am continuing to lose an abundance of hair, feel light headed, have hot flashes, and have several pains associated with my right ovary and my kidney....did I mention weight gain? With all of this, I am trying to direct all of my time to the kids and making/monogramming things to keep my mind off of my health. Teaching 21 first graders and having 3 kids of your own, can help anyone take their mind off of any health issues they may be having! :) Until I get any results, I have more exciting things to think about....such as becoming an aunt!
Tuesday, Dayna is supposed to be induced and we will finally get to see Little Miss Lilly Anne! I will be posting pictures on Tuesday if Lilly Anne decides to let the pitocin do its trick!
On Wednesday, mom and dad are heading to Emory for their appointments with the Cardiologist. Mom has been experiencing odd pains in her arms and chest over the last several weeks. With the recent death of one of their close friends, they are in need of a check-up! Through David's death last week, just a little over a week from hanging with mom and dad at the Georgia/Florida game, we have learned that there are no guarantees to life. Both mom and dad have defied many odds. I have had many more years with them than many doctors have ever expected. Selfish as it may be, it has not been long enough! I am praying for a good report after their visit with Dr. Book.
Please continue to pray for Lainey, the boys, Sid and I, Dayna and Brad, Lilly Anne, and mom and dad! This week will bring a little more craziness into our lives, but we are ready to take it on! Thank you for your continuous lover, prayers, and support! We need it and truly appreciate it!
DeAnn and family