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This blog is to keep our friends, co-workers, and family up to date on our family and Lainey's Cystic Fibrosis.
"Frog Boy" Liam at our church's Trunk - or - Treat.
Georgia is missing out not having this "Big" guy on their team! Logan was "scaring" everyone at Trunk - or - Treat with his muscles!
"Lainey Bug" has lost her wings, but continues to be full of smiles!
Lainey at the Georgia game!
Wednesday is also a big day for Lainey! She will be receiving the first of eight Synagis shots for the prevention of serious illness related to RSV. The home health care nurse will come to mom and dad's house to bring a digital scale and administer her Synagis shot. Two days before each shot we will call the suppliers of Synagis to report her weight. Knowing her exact wight is vital in determining the correct dosage of Synagis. Each shot costs $2300! The doctor wanted these shots to begin in September and last through April. Obviously the insurance company didn't agree with the doctor, thus the reason for beginning a month later! After an appeal from the distributors of Synagis, the insurance company agreed to continue Lainey's monthly shots through April 14th.
The sick Logan James!
Last night Logan went with Gigi and Papa in the "big bus" to begin tailgating at "the Georgia." Around 10:30 mom called to report that Logan was complaining of a headache, had a fever, and was throwing up! At least he made it to the toilet when he felt sick! This happened to be exactly two weeks from his confirmed case of strep throat, and just four days from the completion of antibiotics! Now we are hoping Liam does not get this stomach bug which could possibly postpone his surgery. Although Logan is feeling a little better, he is still feverish as I type!
"Oh really?"
Lainey and Uncle Brad hanging out in Gigi and Papa's motor home.
On Monday Lainey will go see Dr. Caplan for her monthly visit. Maybe she will weigh 13 and one half pounds...this is my goal! She has been eating rice cereal daily, which has helped lower the number of poopy diapers we change per day! Mom and dad will watch the boys since they are out of school on Monday for Columbus Day, while my friend, Jenn, Lainey, and I go to the CF Center. I will try to report about Lainey's doctor visit and Liam's surgery on Wednesday.
Thanks again for all of your prayers! Hopefully we will get a break with illnesses, for the sake of our health and wallet! In addition to the amount we are spending on numerous doctor visits, we were just informed by Liam's daycare that the fees are increasing. We will pay an additional $40 per week beginning in November. This will bring the total to $525 per month, not including his lunch and snacks! We are thankful that mom and dad are able to watch Lainey! Daycare for the two of them would cost roughly $1100 per month. Due to this increase, Sid will be picking up a few hours on Monday and Tuesday after school. It makes it harder on all of us when Sid has to work more hours, but we just thank God that we have that as an option when times get rough! Although it is hard to see at times, God really is Good! Continue praying for us ~ especially for Liam during his surgery on Wednesday and Lainey with the beginning of her Synagis shots.
Much Love,
The Smithsons